Sibling Voices Matter.

Over 6.9 million siblings in the U.S. have a brother or sister with a disability—yet their stories are rarely told.

We’re collecting real stories from siblings of individuals with disabilities for an upcoming book that sheds light on their unique journeys entitled, In the Long Run: Sibling Caregivers and the Complex Journey to Adulthood.

It is a narrative-driven guide that explores the rarely told stories of siblings of individuals with intellectual and developmental disabilities (IDD) while offering tools for navigating the nuanced transition to adulthood and lifelong caregiving

Your voice matters, and your experience can inspire and inform others.

Help us elevate these often-overlooked yet incredibly valuable perspectives.

If you are interested in contributing to this work, please fill out the form below. Contributors to the book will receive a free autographed copy upon its release between the spring and fall of 2026.

Two women, one in a wheelchair, sit on a park bench and look at a green field and trees in autumn, with some people in the distance.
A woman with curly black hair and tattoos on her arm sitting outdoors with a young girl with curly hair in her lap, surrounded by trees and greenery.